How is Europe preparing for secondary use of data in healthcare through EHDS?
Fidelia Cascini is Digital Healh expert engaged by the Italian Ministry of Health on European and national initiative. She recently wrote a book on secondary use of data in healthcare, read it here:
Secondary Use of Electronic Health Data
Public Health Perspectives, Use Cases and Challenges
https://link.springer.com/book/10.100…
This conversation covers the categorization of electronic health data, the importance of distinguishing different data types, and the potential applications and challenges in digital health. We also explore healthcare systems’ digitalization, patient data privacy, the European Health Data Space (EHDS), and future public health perspectives. Learn about patient-generated data, clinical trials, and the significant role of digital health advancements in shaping the future of healthcare.
www.facesofdigitalhealth.com
Newsletter: https://fodh.substack.com/
Youtube: https://www.youtube.com/watch?v=tbSCXUhIDZ8
Show notes:
01:08 Diving into Different Categories of Health Data
01:35 Discussion on Secondary Use of Data in Europe
02:16 Call for Listener Feedback
03:07 Starting the Interview with Felia Kini
03:36 Importance of Distinguishing Data Types
04:38 Challenges in Using Different Data Sources
06:38 Real-World vs. Clinical Trial Data
07:19 Patient Preferences and Medication Adherence
09:31 Most Suitable Data for Secondary Purposes
10:32 Patient Generated Health Data
11:53 Discussions Among Health Ministries
13:09 Trustworthiness and Integration of Digital Tools
17:45 Patient Reported Outcomes in EHRs
19:35 European Health Data Space (EHDS)
29:55 Patient Control Over Data
33:47 Barriers to EHDS Success
37:13 Public Health Perspectives and Global Changes
40:14 Conclusion and Future Perspectives
42:20 Closing Remarks and Upcoming Events
