Digital Health and Health Tech Podcasts

Have you ever wondered what a digital hospital would be like? This episode gives you a pretty vivid concept of that as Pete speaks with Naren Gunja from the Western Sydney Local Health District. This episode will help you to better understand how digitising a hospital can impact the patients, clinicians and systems. It also covers the technology needs of clinicians and how more tech integration can affect their cognitive load.

Health Systems and Life Sciences organizations continue to be exposed to ransomware attacks during the global pandemic with increased impact to patient care and exposure to large global integrated health delivery systems. Patients have recognized significant patient care impacts such as rescheduled surgeries, increased patient wait times, delayed COVID-19 test results, and challenges filling prescription medications.  This presentation will provide healthcare executives a guide to understanding how their organization is positioned to protect against emerging ransomware threats.

Building a Healthcare Innovation Community with Peter Birch

The connection between EHRs and physician satisfaction – and, by extension, clinician burnout – is one that has been well-explored over the past few years. And the COVID-19 pandemic has only made those issues more relevant. Dr. Richard Baron, president and CEO of the American Board of Internal Medicine and the ABIM foundation, joined Healthcare IT News Senior Editor Kat Jercich to discuss his recent JAMA Network Open commentary about why some physicians may be happier with their EHRs than others – and what organizations might do about it.Talking points:-People in physician-owned practices report higher EHR satisfaction-Clinicians feeling technology is done to them, not for them-The clinical purpose of an EHR gets lost-How owning a practice makes a difference-The burnout from "inbox overload"-Using EHRs to answer broader population health questions-Connecting technology to physician success-The effect of COVID-19 on burnout-What organizations can doMore about this episode:EHRs are still a mess for physicians, but change is comingPatient messages via Epic increased during COVID-19, raising burnout concernsFemale physicians spent 33 more minutes per day in EHRsEHR satisfaction: A better way is possibleMayo Clinic study links EHR usability with clinician burnoutKLAS: Clinician burnout is a worldwide problem

ONCE UPON A GENE - EPISODE 134 The Critical Role of Newborn Screening - Rare Mom Alison Breitbarth and Infantile Pompe Disease Alison Breitbarth's son was the first baby in the state of Indiana to be screened for Pompe Disease and receive a positive result. She joins me to talk about the importance of newborn screening. EPISODE HIGHLIGHTS Where does your diagnosis journey begin? Ten days after my son Grant was born, I received a call about results from his newborn screening that indicated he was flagged for Pompe Disease and they were doing further testing. We met with the genetic counselor and learned Grant had the infantile onset form of Pompe Disease, which is the most severe form. Because he was diagnosed through newborn screening, he was able to receive his first infusion at three weeks old and never had a symptom of the disease before treatment. Today, he's doing really well. What is the current treatment for Pompe Disease? An infusion takes about 5 hours and Grant receives them once a week. He will receive his 55th infusion this week and will have them for the rest of his life, or until another treatment becomes available.  What questions do you get from your older son and how do you address them? We've always been honest with Connor, but not gone into much detail. He knows Grant needs medicine every week to keep him healthy. He hasn't asked a lot of questions, but he's starting to understand that everyone has different needs. For example, we've talked about how Connor has Hemophilia, so we have compared how he bruises easily and Grant doesn't.  What is it like integrating with the Pompe Disease community with a child who was diagnosed through newborn screening with immediate treatment options? There are other kids who were diagnosed through newborn screening, but had symptoms right away. The Pompe Disease community is amazing and I've connected with amazing parents who have given me the hope I've needed in the past year.  What are your plans for advocacy? We're in the beginning stages of starting a foundation to raise awareness, help with fundraising efforts for Pompe research, and help families who need assistance getting to see a specialist. International Pompe Day is April 15th and we hope to share more by then. LINKS & RESOURCES MENTIONED Seattle Rare Disease Fair www.rarediseasefair.com ONCE UPON A GENE - Episode 119 - One of the Youngest Children to be Given Treatment for Spinal Muscular Atrophy I with Kathryn Alexander https://effieparks.com/podcast/episode-119-kathryn-alexander CONNECT WITH EFFIE PARKS Website https://effieparks.com/ Twitter https://twitter.com/OnceUponAGene Instagram https://www.instagram.com/onceuponagene.podcast/?hl=en Built Ford Tough Facebook Group https://www.facebook.com/groups/1877643259173346/

Where have efforts to reconstruct patient safety failed and what opportunities exist to remake the landscape of patient safety? How can advances in data technologies and systems thinking help us revolutionize over the next decade? Join host Karen Wolk Feinstein and esteemed guests Dr. Kathleen Sutcliffe, Bloomberg Distinguished Professor at Johns Hopkins University, and Dr. Vivian Lee, president of health platforms at Verily Life Sciences, for a glimpse into the potential for a collaborative, tech-enabled transformation of healthcare safety. View show notes and a transcript of this episode here.

Meet Bruce Vanderhoff, M.D.:Bruce Vanderhoff, M.D. is the Director of the Ohio Department of Health. Before his directorship, he was the department’s Chief Medical Officer. Prior to that, Dr. Vanderhoff served in a variety of roles at OhioHealth, including the Senior VP, Chief Medical Officer, and VP of Medical Education, Quality, and Patient Safety. He also practiced as a family medicine physician. Dr. Vanderhoff received his M.D. from the University of Pennsylvania and an MBA from Franklin University.Key Insights:Dr. Vanderhoff dives into pandemic management and leadership lessons from a state government perspective.Ohio’s Vax-a-Million. Dr. Vanderhoff described the design behind Ohio’s vaccine lottery. The goal was to incentivize people that were inclined to get the vaccine, but hadn’t done so yet. Two weeks after the program was announced, there was a 28% increase in the number of people getting vaccinated. (3:33)Lessons for Public Health. Dr. Vanderhoff emphasized that we cannot predict all potential public health threats. However, we know that people who are healthy are better able to weather pandemics and other health challenges compared to people who are unhealthy. Thus, improving the overall health of people is a crucial part of preparation for future public health threats. (19:58)Problem Solving Methodology. To achieve big goals, Dr. Vanderhoff recommends designing a plan that is iterative, that breaks down the problem into smaller steps. He also points to the importance of understanding lived experience. Seek out perspectives from workers on the frontlines before formulating solutions to their problems. (33:35)Relevant Links:Read more about Dr. VanderhoffRead “DeWine names Dr. Bruce Vanderhoff as the Ohio Department of Health's new director”

We’ve got a very special guest on this episode. In Season 2 of DTx Podcast, we will focus greater attention on the evidence and commercialization of Digital Therapeutics. To bring even more context and insights to these conversations, I'm excited to introduce my partner this season: Dr. Chandana Fitzgerald, or as you’ll hear her own name of choice - "Dr No Craic"! Don't worry, the name will be explained in this episode. Join us as we briefly rewind the past year in DTx as we discuss SPAC’s and going public, new entrants and exits in the DTx space, and much more. Chandana also asks me a few questions about the history and goal of the DTx Podcast and what we have to look forward to in season two. But before we dive in… I remember when Martin Kelly introduced me to Chandana at one of the HealthXL events about 5 years ago. Chandana was witty, sharp and fun to speak with. Chandana comes from a clinical background as a physician, and is now the Chief Medical Officer and General Manager of HealthXL. And, as you'll here in this first episode of Season 2 of DTx Podcast, she's also my clinical and commercialization partner with all the tough questions for our guests!  Links and Resources: Brian Dolan Martin Kelly Ed Cox Dan Kendall Better Therapeutics Pear Therapeutics Akili Interactive Pierre Leurent Cognito Therapeutics Digital Therapeutics Alliance Mark Sluijs Alex Therapeutics Karuna Labs Nightware Smiley Scope Host Links: Connect with Eugene Borukhovich: Twitter | LinkedIn Connect with Chandana Fitzgerald, MD: Twitter | LinkedIn Connect with YourCoach.health: Website | Twitter Check out Shot of Digital Health with Eugene and Jim Joyce: Website | Podcast App HealthXL: Website | Twitter | Join an Event Season 2 of Digital Therapeutics Podcast would not be possible without the support of leading DTx organizations. Thank you to: > Presenting Partner: Amalgam Rx > Contributing Sponsors: Akili | Big Health | Click Therapeutics | Lindus Health Follow Digital Health Today: Browse Episodes | Twitter | LinkedIn | Facebook | Instagram Follow Health Podcast Network: Browse Shows | LinkedIn | Twitter | Facebook | Instagram

When the war in Ukraine began, Marta Kaczmarek welcomed one of the refugee families to her home. She then thought about how more could be done to help Ukrainians and started an incentive called  EIT Health Ukraine. EIT Health, which is a European organsation connecting stakeholders in healthcare, partnered with the Polish Medical Mission. PMM is a 22 years old Polish humanitarian organization that provides medical aid to the countries most in need in the world. Since 1999, the Polish Medical Mission Association has been helping victims of wars, catastrophes and natural disasters. Their volunteers include doctors, paramedics, nurses, rehabilitators, as well as psychologists and medical analysts.  In this episode, speakers: Ewa Piekarska, President of the Board, Head of the Development Aid Program, Polish Medical Mission andMarta Kaczmarek, Coordinator of the EIT Health Ukraine Appeal explain the current needs for medical support, what supplies are in demand and more.  EIT Health Ukraine appeal is ongoing, so if you’re a medical device manufacturer or have the ability to donate medical equipment, please go to the link in the show notes and coordinate with EIT Health to provide help to Ukraine. Please complete the form on EIT Health’s website:  https://eithealth.eu/ukraine-appeal/    This episode is supported by EiT Health Germany, which is one of eight Knowledge and Innovation Communities (KICs) currently funded by the European Institute of Innovation and Technology (EIT). If you're a startup working in the field of digital health or biotech and don't know EiT Health Germany yet, I would encourage you to visit eit-health.de, where you will find more about innovation, acceleration, and education programs. And as you will hear from Marta, it doesn’t matter if you’re a startup, a small or a large business. If you would like to contribute to support Ukraine, anything you can do to help, will help.

Jim Joyce is BACK with me this week on #TheShot of #DigitalHealth Therapy (though he did a disappearing act on this episode as well)! This week we got to host Saul Marquez who has spent the last 15+ years in the medical device industry and balances that with his media career as a fellow podcaster and founder of Outcomes Rocket Podcast: 🎧 Classical Humanities & Media 🎧 Patient Monitoring & Nurse shortages 🎧 Opioids & Digital Capabilities 🎧 #DTx Medical Device 🎧 oh and... Balance vs. Rhythm as life advice .... Fun Mentions as always: Matthew Holt (of course - you must listen!) Chandana Fitzgerald Daniel Couchman Kendall Peter H. Diamandis Martin Kelly John Lee Dumas Scott Becker

Have you ever wondered about the possibility of a more personalised up-to-date manner to prevent pressure injuries in aged care and hospitalised patients? In this episode, we learn about a new sensor technology that has the ability to change how clinicians prevent pressure ulcers while reducing work and financial expenses.

In the first of a short series of special podcasts, we “Share The Mic” with Frontline AIDS to highlight the critical role communities themselves have to play in defeating AIDS and other pandemics. We head to Ukraine, and learn more about how Frontline AIDS’ national partner, the Alliance for Public Health is delivering HIV medications and health services, despite desperately difficult circumstances, to people in need. And we dig deep into how global funding for the global response to AIDS is being squeezed by both the radical disruption of the global security order precipitated by the war, and the global COVID-19 pandemic.  For more information about how you can help the Alliance for Public Health save lives in Ukraine visit  https://frontlineaids.org/donate Joining host, Ben Plumley, are panelists Christine Stegling, Executive Director, Frontline AIDS Pavlo Smyrnov, Deputy Executive Director, Alliance for Public Health, Ukraine Elisha Dunn-Georgiou, President and CEO, Global Health Council Directed by Erik Espera, and our digital producer is Troy Espera. The Frontline AIDS production team are Fionnuala Murphy, Will Harris and Allie Liu.   https://frontlineaids.org https://aph.org.ua/en/about-alliance https://globalhealth.org #StandWithUkraine #WARINUKRAINE #Ukraine #war #AIDS #HIV #TB #Malaria #harmreduction #humanrights #communities #GlobalFund #GlobalHealth #PandemicsResponses #COVID

Meet the Guests:This episode features three leaders previously showcased on Her Story and the powerful advice they received from mentors. Renee DeSilva is the CEO of The Health Management Academy. Melinda B. Buntin, Ph.D. is a Mike Curb Professor and Chair of the Department of Health Policy at Vanderbilt University. And JaeLynn Williams, the CEO of Air Methods.Key Insights:Mentors play an important role in career trajectory by providing advice, perspective, and direction.Personal and Professional Development. Renee’s mentor provided an outside perspective, helping her understand her unique strengths and areas for improvement. (1:07)Maintaining Job Opportunities. Dr. Buntin’s mentor pointed out that too many consecutive roles in government would limit her job opportunities in academia. Due to that advice, Dr. Buntin maintained her connections and continued to publish research to keep those doors open. (3:21)What is Your Ideal Job? Jaelynn was given the advice to start with the end in mind. To think about her ideal job and work backwards to determine the experiences and skills necessary to achieve that. This informed her choice to leave a company she worked at for many years to pursue a new opportunity. (4:51)

Chris Bevolo continues his research-based predictions from his latest book, Joe Public 2030. In this second part of the two-part series, Bevolo focuses on three more predictions that may permanently alter the way that consumers make healthcare choices — the funnel wars, healthcare sectarianism, and disparity dystopia.This conversation is brought to you by Actium Health. For more information about our show or guests, visit hellohealthcare.com.  See acast.com/privacy for privacy and opt-out information.

Meet the Guests:This episode showcases three guests previously featured on Day Zero. Mike McSherry is the CEO of Xealth, a platform that facilitates clinicians prescribing digital health tools to patients, tracking usage, and improving digital health recommendations. Brandon Weber is the co-founder and CEO of Nava, a benefits brokerage firm that facilitates high quality healthcare to employers. Sean Mehra is the founder and CEO of HealthTap, a virtual-first, affordable urgent and primary care clinic. Key Insights:Healthcare presents a unique ecosystem for entrepreneurs. No market is as complicated, regulated, and confusing as healthcare.Advancing Technology.  Entrepreneurism in healthcareis extra challenging because healthcare often lags in adopting new technology. A hospital may have cutting edge MRIs, and yet still use fax machines. Unpredictable adoption can be due variable reimbursement plans, conflicting incentives, and government regulations. (1:39)Fixing the Bottleneck. There is a huge explosion of innovation on the supply side of healthcare, but it is not reaching buyers. Part of the bottleneck is in the benefits brokerage industry. Brandon thinks the future might already be here, it’s just not evenly distributed. (3:30)Expanding the Production Possibility Frontier. In the next 5-10 years, Sean predicts that technology innovation will make supply and demand transactions more efficient, such as telehealth better connecting patients to providers, and make supply itself more efficient, like AI and algorithms to help providers. (5:39)

The pelvic floor plays an important role supporting the bowel and bladder (as well as the uterus and vagina in females). Hormone changes due to pregnancy and peri/menopause and other factors can impact their function. Several at-home devices are now on the market to support the pelvic floor, but do they help you? And if so, which is right for you? Enter Dr. Allyson Shrikhande. Dr. Allyson Shrikhande, a board certified Physical Medicine and Rehabilitation specialist, is the Chief Medical Officer of Pelvic Rehabilitation Medicine. She is also the Chair of the Medical Education Committee for the International Pelvic Pain Society. A leading expert on pelvic health and a respected researcher, author and lecturer, Dr. Shrikhande is a recognized authority on male and female pelvic pain diagnosis and treatment.  We discuss the following: Do electronic pelvic floor devices work? What are the limitations of at-home pelvic floor devices? How to afford these devices How to know if your device is helping or hurting How Pelvic Rehabilitation Center is trying to increase access to care What does FDA approval for classified medical devices mean? We cover the following pelvic floor-related devices, tools, and exercises. Elvie Perifit K-fit Flyte Innovo Elitone Thigh master-like devices Jade eggs Kegel weights  Exercises like yoga, pilates, hypopressives “Listen to your body. If your symptoms are getting better, you are on the right path. Before using these devices, get an evaluation, if you can, by a pelvic floor specialist.” - Dr. Allyson Shrikhande Follow Pelvic Rehabilitation on Facebook, Instagram and Twitter Resources: Dustienne Miller Yoga Adriene’s Yoga Pelvic Floor Podcast Playlist Pelvic Floor Resources Yoga for Incontinence Yoga for Postpartum If you liked this episode and you're feeling generous, don't forget to leave a review on iTunes or Spotify! And be sure to: Follow Fempower Health on Instagram for updates and tips. Tell 2-3 of your friends about this episode!   **The information shared by Fempower Health is not medical advice but for information purposes to enable you to have more effective conversations with your doctor. Always talk to your doctor before making health-related decisions. Additionally, the views expressed by the Fempower Health podcast guests are their own and their appearance on the program does not imply an endorsement of them or any entity they represent.** **Contains affiliate links and I will be compensated if you make a purchase after clicking on my links** About Dr. Allyson Shrikhande Dr. Shrikhande, a board certified Physical Medicine and Rehabilitation specialist, is the Chief Medical Officer of Pelvic Rehabilitation Medicine. She is also the Chair of the Medical Education Committee for the International Pelvic Pain Society. Dr. Shrikhande is passionate about this cause and dedicated to helping men and women with pelvic pain who often suffer without anyone willing to listen, understand or find the cause of their pain. That’s why she has traveled the world to work with expert gynecologists, urologists, physiatrists and interventional pain physicians. With an extensive background in mainstream clinical medicine, she also makes use of many alternatives, holistic and homeopathic approaches. She has published peer-reviewed articles on the treatment of muscle pain in academic journals and works closely with renowned pelvic pain gynecologists and urologists. Taking a team approach, she works with specialists in pelvic floor physical therapy, kinetics and movement, as well as acupuncturists, nutritionists, cognitive behavioral therapists and functional medicine physicians. Dr. Allyson Shrikhande currently teaches fall and spring remote courses at the Herman & Wallace Pelvic Rehabilitation Institute.

Edo Banach (President and CEO of the National Hospice and Palliative Care Organization) joins the show to discuss everything you need to know about palliative care vs. hospice.This episode is sponsored by the Institute of Healthcare Improvement. Learn more about how IHI is improving health and healthcare by visiting them at www.IHI.org.Watch this episode on YouTubeFind us on the web: Follow CareTalk on the Health Podcast NetworkFollow John on TwitterFollow David on Twitter About Edo Banach:Edo Banach is President & CEO of the National Hospice and Palliative Care Organization.  He previously was the Senior Advisor and Deputy Director of the Medicare-Medicaid Coordination Office at the Centers for Medicare & Medicaid Services and Associate General Counsel at the Visiting Nurse Service of New York.  Prior to that, Edo Banach was the Medicare Rights Center’s General Counsel.  Edo has also practiced health law at the firms of Latham & Watkins and Gallagher, Evelius and Jones, and clerked for U.S. Judge John T. Nixon of the Federal District Court for the Middle District of Tennessee.  Prior to attending law school Edo worked for the New York City Department of Homeless Services and Mayor’s Office of Operations. Mr. Banach holds a B.A. from Binghamton University and a J.D. from the University of Pennsylvania Law School.#hospice #palliativecare #musictherapy #cancertherapy #healthcare #healthcarepodcast #healthcarepolicy #healthcareindustry

By now you must have heard about NFTs, crypto, Web3 and the metaverse. For many, these terms are quite foreign and their concept is complex. This episode breaks down these increasingly popular terms, a blockchain expert, Damien King and our host, Pete discuss NFTs, Web3, cryptocurrency, health tech, the metaverse and much more, as they look at the potential healthcare benefits of these technologies.

Improving Metabolic Health with Carlee Hayes

Hadil Es-Sbai is on a mission to make clinical trial data more secure and accessible. His company, Triall, is attempting to revolutionize the clinical trial industry. They’re building an easy and secure way for researchers to conduct trials as well as for participants to stay engaged. Hadil shares why blockchain solutions are a perfect match for an industry like clinical research and how it can make the transition to Web3. Topics Covered: How Hadil got into blockchain after working over 20 years in the clinical research industry The different blockchain integrated e-clinical solutions that Triall is developing How blockchain solutions can help streamline clinical development activities Using LTO Network, Accumulate – but blockchain agnostic   The ways Triall is making it easier for participants and researchers to complete clinical trials How Triall is ensuring patient privacy and also accessibility for researchers Triall’s ICO and TRL token Roadmap for the future of their platform About the Guest Connect with Hadil Learn more about Triall Resources Mentioned CR2O Sphereon The 48 Laws of Power News Corner Louisiana sues UnitedHealthcare, OptumRx for alleged Medicaid drug overcharging - https://digitalhealth.modernhealthcare.com/technology/louisiana-sues-unitedhealthcare-optumrx-alleged-medicaid-drug-overcharging Hyperledger - Healthcare Special Interest Group Meetings https://wiki.hyperledger.org/display/HCSIG/HC-SIG+General+Meetings Health Unchained Links Website: https://healthunchained.org Telegram: t.me/healthunchained Twitter: twitter.com/Healthunchaind

Jennifer Schneider used to be the Chief Medical Officer and President of Livongo. In 2022 she started a company focused on improving access to healthcare in rural America. More than 46 million Americans, or 15 percent of the U.S. population, live in rural areas. Now the company called Homeward is on the mission to deliver care to those who don’t have it, starting in rural America. In this discussion, you’ll hear more about the challenges related to rural health, how could care be brought to the community instead of patients needing to travel two to five hours for a 15 minutes visit, and more. www.facesofdigitalhealth.com

Sponsored: Dan Dennis, Hyland Software’s senior vice president and chief information security officer, outlines how organizations can navigate the ever-changing cyber threat landscape and keep staff engaged through talent retention and training.

The COVID-19 pandemic has had spillover effects on screening and preventive care. But even before the novel coronavirus, adequate screening for disease, especially among vulnerable people, was still a public health concern.A recent study from the Regenstrief Institute and Indiana University found that even though screening rates have improved, about one in five women still do not receive a test for syphilis during pregnancy –- which is recommended by the CDC given the serious threat syphilis can pose to the health of the fetus. Brian Dixon, study senior author and director of public health informatics at the Regenstrief Institute, joined Healthcare IT News to speak about the research and the role IT can play in informatics.Talking points:-Rates of congenital syphilis have been rising-Previous studies have largely only used claims data-The benefits of syphilis screening during pregnancy-Disparities in syphilis screening rates, and what might be behind them-The potential effects of COVID-19 on screening rates-How public health leaders could use information like this-More ways health IT can be used to support public health objectives-The next projects on deck at RegenstriefMore about this episode:Regenstrief, IU launch public and population health programRegenstrief launches initiative to disseminate SDOH dataHow HIEs can enable public health reporting when EHRs fall shortHospitals facing big hurdles to public health data reportingCIOs plan big investments in EHR optimization and pop health IT

ONCE UPON A GENE - EPISODE 133 The Unique Expertise of a Genetic Counselor - Helping Rare Disease Individuals and Families Navigate Through Complex Emotions and Circumstances Like Guilt, Grief, and Shame with Mary-Francis Garber Mary-Francis Garber is a Genetic Counselor who has a private practice where she offers support to patients and families affected by a rare disease diagnosis. We discuss emotional responses to grief, shame and guilt. EPISODE HIGHLIGHTS Where does your career in genetic counseling begin? I was fortunate to get into the program at Sarah Lawrence College, where the field of genetic counseling originated. I wanted to be a medical provider with a focus on helping people understand genetics. I also enjoyed the counseling side and focused my early career in high-risk obstetrics. I opened my personal practice to provide ongoing supportive care to patients, parents and families who are experiencing something related to genetics, during pregnancy, in pediatric settings or as adults.  How do you help a parent who feels an overwhelming guilt after their child is diagnosed? I sit with them, I'm present and I listen. Guilt is self-imposed and it's easy to get stuck in guilt and the early stages of depression after a diagnosis. Sometimes it takes time, but my hope is that someone can eventually see that the guilt they feel isn't necessarily the appropriate emotion. I remind patients to be good to themselves and to journal about why they feel guilt so they can take the feelings from their heart and head, put it on the paper and expel or release it. How is feeling ashamed different from guilt? Parents sometimes feel ashamed as a result of thoughts they've had about their child. We're all human and we have faults. When we're tired or overwhelmed, we have negative thoughts. Feeling ashamed, just like feeling guilty, isn't justified when you're trying to do your best.  What advice can you share for supporting someone who is going through a genetic diagnosis? My patients often don't want to share their news because they don't want to be pitied and they don't want to get questioned, especially when they can't answer a lot of questions themselves. Just be there, listen, reflect on what they say, validate their feelings and try not to bombard them with questions. LINKS & RESOURCES MENTIONED Listening Reflecting Healing listeningreflectinghealing.com Varient App  https://www.varientapp.com/ Once Upon a Gene TV https://www.thedisordercollection.com/ ONCE UPON A GENE - EPISODE 114 - The Bravery of the Brokenhearted - A Big Brothers Perspective on Grief From the Loss of a Sibling with Sanfilippo Syndrome with Noah Siedman https://effieparks.com/podcast/episode-114-noah-siedman National Society of Genetic Counselors nsgc.org TUNE INTO THE ONCE UPON A GENE PODCAST Spotify https://open.spotify.com/show/5Htr9lt5vXGG3ac6enxLQ7 Apple Podcasts https://podcasts.apple.com/us/podcast/once-upon-a-gene/id1485249347 Stitcher https://www.stitcher.com/podcast/once-upon-a-gene Overcast https://overcast.fm/itunes1485249347/once-upon-a-gene